Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network

dc.contributor.authorHeard, Jean-Michel
dc.contributor.authorVrinten, Charlotte
dc.contributor.authorSchlander, Michael
dc.contributor.authorBellettato, Cinzia Maria
dc.contributor.authorvan Lingen, Corine
dc.contributor.authorScarpa, Maurizio
dc.contributor.authorSzakszon, Katalin
dc.contributor.authorPfliegler, György
dc.contributor.authorKáposzta, Rita
dc.date.accessioned2020-01-15T13:00:05Z
dc.date.available2020-01-15T13:00:05Z
dc.date.issued2020
dc.date.oa2020-09-07
dc.date.pasync2020-01-17T01:30:20Z
dc.date.updated2020-01-17T01:30:20Z
dc.description.correctorLB
dc.identifier.citationOrphanet Journal of Rare Diseases. -15 : 3 (2020), p. 1-10. -Orphanet J. Rare Dis. - 1750-1172. - 1750-1172
dc.identifier.doihttp://dx.doi.org/10.1186/s13023-019-1280-5
dc.identifier.issn1750-1172
dc.identifier.opachttp://webpac.lib.unideb.hu:8082/ebib/CorvinaWeb?action=cclfind&resultview=long&ccltext=idno+BIBFORM082917
dc.identifier.urihttp://hdl.handle.net/2437/278554
dc.identifier.urlhttps://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1280-5
dc.languageeng
dc.rights.accessopen access journal
dc.subject.mabOrvostudományok
dc.subject.mabKlinikai orvostudományok
dc.tenderEgyéb Third Health Programme ERN-2016 - Framework Partnership Agreement 2017-2021, Project ID No. 739543.
dc.titleAvailability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network
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