Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network
dc.contributor.author | Heard, Jean-Michel | |
dc.contributor.author | Vrinten, Charlotte | |
dc.contributor.author | Schlander, Michael | |
dc.contributor.author | Bellettato, Cinzia Maria | |
dc.contributor.author | van Lingen, Corine | |
dc.contributor.author | Scarpa, Maurizio | |
dc.contributor.author | Szakszon, Katalin | |
dc.contributor.author | Pfliegler, György | |
dc.contributor.author | Káposzta, Rita | |
dc.date.accessioned | 2020-01-15T13:00:05Z | |
dc.date.available | 2020-01-15T13:00:05Z | |
dc.date.issued | 2020 | |
dc.date.oa | 2020-09-07 | |
dc.date.pasync | 2020-01-17T01:30:20Z | |
dc.date.updated | 2020-01-17T01:30:20Z | |
dc.description.corrector | LB | |
dc.identifier.citation | Orphanet Journal of Rare Diseases. -15 : 3 (2020), p. 1-10. -Orphanet J. Rare Dis. - 1750-1172. - 1750-1172 | |
dc.identifier.doi | http://dx.doi.org/10.1186/s13023-019-1280-5 | |
dc.identifier.issn | 1750-1172 | |
dc.identifier.opac | http://webpac.lib.unideb.hu:8082/ebib/CorvinaWeb?action=cclfind&resultview=long&ccltext=idno+BIBFORM082917 | |
dc.identifier.uri | http://hdl.handle.net/2437/278554 | |
dc.identifier.url | https://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1280-5 | |
dc.language | eng | |
dc.rights.access | open access journal | |
dc.subject.mab | Orvostudományok | |
dc.subject.mab | Klinikai orvostudományok | |
dc.tender | Egyéb Third Health Programme ERN-2016 - Framework Partnership Agreement 2017-2021, Project ID No. 739543. | |
dc.title | Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network | |
dc.type | idegen nyelvű folyóiratközlemény külföldi lapban |
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